registry development calendar

View a timeline for changes and/or updates made to the ELSO Registry during the calendar year. This timeline also applies to creating, modifying and updating addenda. The ELSO Registry is the world’s leading source of info on patients receiving ECMO.

ECMO | Extracorporeal Membrane Oxygenation

Calendar for ELSO Registry Changes


** The following is for informational purposes and reflects the current timeline for any changes and/or updates made to the ELSO registry during the calendar year. This also applies to the creation, modification, and/or updating of addenda. This outline has been agreed upon and reflects the work of the ELSO registry Development Steering Committee effective 7/15/2020

December 20 (4.5 months prior to biannual Registry update):

  • All technical changes need to be completed so that documentation can be done

January 10

  • Deadline to submit data for inclusion in upcoming Registry Freeze

January 15

  • Registry Closes
  • Registry is frozen for use in data requests and outcome reporter

February 1 (2.5 months prior to Registry update):

  • Change Document is finalized including;
    • Cover page explaining rationale behind changes and directing user to where the changes can be found in Database Definitions, Instructions Document & Registry Forms
    • Table highlighting changes including a) New fields, b) Altered fields and c) Retired fields
    • Preface that defines what a new tab, new subject category or sub-category data field
  • XML Schema and XSD with Updated XML Upload Instructions to be Posted
  • Database Definitions, Instructions, and Form updates are completed and posted
  • Communication with ECLS community via email directing attention to the updated documentation which will be posted

April 10:

  • Deadline to submit data for inclusion in annual reports

April 15:

  • Registry Closes
  • Finalize any updates to Instructions Documents & Registry Forms
  • Go-live of Registry updates
  • Go-live of changes to XML files
  • Freeze Database
  • Generate Once Annual Reports (only through end of last year)

June 1 (4.5 months prior to biannual Registry update):

  • All technical changes need to be completed so that documentation can be done

July 10:

  • Deadline to submit data for inclusion in upcoming Registry Freeze

July 15:

  • Registry Closes
  • Registry is frozen for use in data requests and outcome reporter

August 1 (2.5 months prior to Registry update):

  • Change Document is finalized including;
    • Cover page explaining rationale behind changes and directing user to where the changes can be found in Database Definitions, Instructions Document & Registry Forms
    • Table highlighting changes including a) New fields, b) Altered fields and c) Retired fields
    • Preface that defines what a new tab, new subject category or sub-category data field
  • XML Schema and XSD with Updated XML Upload Instructions to be Posted
  • Database Definitions, Instructions, and Form updates are completed and posted
  • Communication with ECLS community via email directing attention to the updated documentation which will be posted

October 10:

  • Deadline to submit data for inclusion in the updated annual reports

October 15:

  • Registry Closes
  • Finalize any updates to Instructions Documents & Registry Forms
  • Go-live of Registry updates
  • Go-live of changes to XML files
  • Update/Refresh Reports (only through end of last year)
Download Registry Change Calendar (PDF) 01-14-2021

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